研究会・
イベント

21名の方のご来場・LIVE配信14名のご視聴をいただき、無事終了いたしました。

今回は、医学、看護学からみた生活の質および満足度の評価についてご講演いただき、難病医療の理解に繋げることができたと思います。開催後の感想でも当難病医療推進センターへの期待の声をたくさんいただきました。

講演後の交流会が、患者さん・そのご家族らの出会いの場、情報交換の場となり、濃密な時間を過ごすことができました。

今後も難病のことを知っていただく場、つながる場を提供できるように、RDD at 医誠会のイベントを続けていきたいと思います。

With 21 attendees present on-site and 14 viewers joining via the live stream, the event concluded successfully.

This time, we were honored to have a lecture on the evaluation of quality of life and satisfaction from the perspectives of medicine and nursing, which we believe helped deepen understanding of medical care for rare diseases.In the feedback received after the event, we also heard many voices expressing expectations for our Center for Promoting Treatment of Intractable Diseases.

The networking session after the lecture became a valuable opportunity for patients and their families to meet one another and exchange information, allowing us to spend a very meaningful and enriching time together.

We hope to continue holding RDD at Iseikai events so that we can keep providing opportunities for people to learn about rare diseases and connect with one another.